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Anna Lena BrorssonJaneth LeksellMikael Andersson FrankoAnna Lindholm Olinder 

ABSTRACT

Introduction

Young people with type 1 diabetes and their parents need to receive person‐centred education to be able to manage their diabetes. Guided Self‐Determination‐Young (GSD‐Y) is a person‐centred communication and reflection education model that can be used in educational programmes for young people with type 1 diabetes.

Objective

To evaluate whether GSD‐Y leads to improved glycaemic control, increased self‐perceived health and health‐related quality of life, fewer diabetes‐related family conflicts, and improved self‐efficacy in a group‐based intervention for adolescents starting continuous subcutaneous insulin infusion (CSII) and their parents.

Methods

This randomized controlled trial included 71 adolescents starting CSII. Participants were followed for twelve months. The intervention group (n=37) attended seven group training sessions over a period of five months, using the GSD‐Y model, the control group received standard care. Variables evaluated were HbA1c, self‐perceived health, health‐related quality of life, family conflicts, self‐efficacy, and usage of continuous glucose monitoring.

Results

When adjusted for sex and family conflicts, there was a difference in glycaemic control between the groups at twelve months, favouring the intervention group (62 vs. 70 mmol/mol, p=0.009).

When analyses were performed on boys and girls separately and adjusted for family conflicts, the only difference detected was for boys after twelve months (p=0.019). The intervention showed no effect on self‐perceived health, health‐related related quality of life, family conflicts, or self‐efficacy.

Conclusions

An intervention with GSD‐Y may have an effect on glycaemic control. The content of the GSD‐Y groups may serve as a model for person‐centred care in adolescents with type 1 diabetes.

 

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